The Hypocrisy of Autism Speaks; A Searing Message to Donald Trump

Just as the Catholic Church is hypocritical about sex (particularly premarital sex), Autism Speaks seems to have turned into a hypocrite earlier this week during their annual Light It Up Blue campaign. I saw a couple of my relatives on Facebook plaster their profile pictures with a Autism Speaks filter that read, “Light It Up Blue for Love and Acceptance.” I was very skeptical about the organization’s change to their mission statement months ago, and the fact that members of my extended family chose to paint their Facebook profile pictures blue for the sake of autism awareness compounded my skepticism even further. “Autism Speaks seems to have changed their tone about autistic people, yet they’re still calling Code Blue on us. I don’t understand it,” I tweeted the morning of World Autism Awareness Day, which I call World Autism ACCEPTANCE Day. @LetsStimTonight, one of my followers, concurred with me as she replied, “I can’t trust their change of tone. If they took a moment to acknowledge the harm that they did, that they *were* in the wrong, and that those views no longer reflect their message, then maybe. Until then, I see them as the same ableist people with a more appealing mask.” This begs the question: What’s the point of a so-called “charity” like Autism Speaks vowing to do right by the group of people they claim to support only to turn back around and continue to demonize us for profit? It’s like a borderline obese man promising his wife to change his diet and hit the gym, slim down, and then two months later decides to eat a donut, a bag of Cheetos, and a hot dog, thereby reverting back to his unhealthy habits and pissing off his wife to the point where she files for divorce.

To compound matters further, Donald Trump (I REFUSE to call him President) published a proclamation on the White House website two days before World Autism Awareness Day that celebrates the contributions autistics have made to society and calls for a greater understanding of us, yet encourages further research into treatments and a cure for autism. This statement coming from the guy who has spread countless falsehoods about autism and its causes on Twitter. He even went so far as to say that a child can develop symptoms of autism after undergoing multiple rounds of vaccinations, therefore the government should put the kibosh on the vaccination program, or at the very least, require doctors to administer smaller doses of vaccines to their infant patients. And for the first time ever, Trump lit the White House blue per the suggestion of Autism Speaks co-founders Bob and Suzanne Wright, the latter of whom is deceased.

And now, a heartfelt letter to America’s most controversial president.

Dear Mr. Trump,

My name is Cristina, and I’m a 23-year-old autistic woman currently in her junior year of college. There are multifarious reasons why I refuse to call you President. Your stance on autism tops that laundry list. Before you were elected into office, I was extremely anxious about the laws you would write and pass that would strip every autistic person’s right to live their lives freely and independently without discrimination for their neurology. Judging by the damning tweets you wrote about autism and your Autism Awareness proclamation published on the White House webpage, I was right. You’ve tweeted countless times before your election that rigorous vaccinations have increased autism rates. As the daughter of a pharmacist, I’d like to tell you that is not the case. First off, autism is caused by a genetic mutation, NOT vaccines, especially the MMR vaccine. Anti-vaxxers like yourself believe vaccines cause autism due to the mercury-based preservative thimerosal, even though the compound has been banned from usage since 2001. Second, autism rates have increased not because there are more autistic people than ever before, it is due to advances in diagnostic methods. Whether autism has been diagnosed in early childhood, adolescence, or even adulthood–some people don’t even know they’re autistic until they hit their 40’s–autistic people may be eligible for benefits from Social Security and health insurance. For some autistic people, attaining Social Security benefits can be difficult, even with comorbid disabilities seen or unseen, such as anxiety and depression. Meanwhile, you made a proposal for Congress to slash $15.1 billion from the Department of Health and Human Services, which would make it even more difficult for us to get the funding we need to cover our health expenses. I have three more years under my mother’s health insurance plan, and once I turn 26, I’m going to have a hard time shopping for an affordable insurance plan or even apply for Social Security benefits simply because you think autistic people, with or without comorbid disabilities, aren’t good for it.

It’s one thing for autistic people to experience bullying by their neurotypical peers in public school, but for you, the most powerful man in the country, if not the world, to bully us? By proposing such laws that discriminate against us–dismantling the Americans with Disabilities Act (ADA), the Individuals with Disabilities Education Act (IDEA), and the Affordable Care Act (ACA)–you’re turning the clock back 20 years, taking away all the rights and benefits we have fought so hard to attain. Rolling back protections guaranteed to us by the aforementioned acts can be detrimental to our overall well-being, even fatal. We’ve taken a lot of prejudice in school and at home (in some cases), but we’re not gonna take it from you. If you do anything that threatens our very livelihood, we will fight to have you impeached. That is a promise.

 

Sincerely,

Cristina Alexander

 

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One thought on “The Hypocrisy of Autism Speaks; A Searing Message to Donald Trump

  1. Cristina,
    Mr. Trump has a lot on his plate at the moment. Perhaps you won’t have to worry about what he’ll do during the rest of his presidency. It might not be that long.

    Like

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